Sunday, April 29, 2012

One tuff kid!

Adan is doing really great physically.  He has no pain and has even been up and walking today!  They can't believe how well he is doing so quickly.  Talked with the doctor today and got all the details.  They took the skin from his arm because it is very thin and it matched the coloring of his face the best and they needed the vein with it.  They covered it back up with skin from his leg because that skin is large and layered and it will regrow a new layer.  They had his arm cut down to muscle and tendons so it would not be able to grow back.  They were not able to put the bones from his rib in yet so they made a pocket in his belly and put them there for the next surgery.  Being stored in his body is the safest way to keep them alive.
The swelling has gone down today around his face but his skin flap is still large. 
On the emotional side, he is not doing so well.  We talked about what stage he is at and what he looks like and how we are going to deal with it and how it does not change who Adan is.  The surgeon came in while I was talking with him (God's timing) and so we got a mirror and he explained everything to Adan.  There were a lot of tears after the doctor left and he is coping by basically being withdrawn.  He did tell me that he is mad at God.  Going all the way back to why God ever allowed this to happen to him as a baby.  Pray he finds it in his heart to find forgiveness and let his anger go.  Pray I have the right words and actions to help him through this time.
On the positive side, he is happy that the hole in his mouth is closed forever and he doesn't have to deal with things going up in his nose when he eats and drinks and that when he has a cold his nose will run instead of it through the hole in his mouth.